My Story – Part III


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14 thoughts on “My Story – Part III

  1. Pingback: My Story – Part I « Autoimmune-Paleo

  2. Waiting anxiously for the next installment ~ thanks for sharing.

    • Thanks for reading! I’m planning on doing a recipe or two this weekend and then writing the rest next week 🙂

  3. I have also encountered similar events as you have detailed in your stories. Less severe, but same bouts. I am also told by the healthcare community that I am okay. However, I do have hypothyroidism and the doctor wants to do a brain MRI of my pituitary gland. He thinks there is something wrong with it. I myself have found that the lite version of paleo diet works for me along with the elimination of high salicylates and FODMAP related foods. leisure exercise/activities, although I have been more inclined to do indoor exercise activities due to environmental allergies. I feel aches and pains that come and go, but I have learned to manage and accept. I am interested to know how you manage your diet. THANK YOU, for posting your ideas and story.

    • Hi Amely,
      Thanks for the message! I had an MRI also, to check my pituitary as well as look for MS (both came out fine). My thyroid bloodwork comes back within all of the accepted ranges and I was denied treatment for a long time, until I found a naturopath that was willing to let me try a small dose of dessicated thyroid that has really helped. Paleo has been nothing short of a miracle for me, and over the last year have been tweaking as I find out more about the gut and how to better help mine heal. I also have a sensitivity to FODMAPs – I strictly avoided them for a couple of months, and now I can have small amounts of the lesser offenders without looking pregnant. I believe this to be because of SIBO instead of fructose intolerance since it is getting better with time, but I haven’t been formally tested so I don’t know.

      Managing diets with chronic illness is so tricky because we are all different, but one thing rings true – keep trying things until you find something that works for you, and don’t be afraid to stick with it. Nobody can know your body as well as you do, and I think the better a person can access that intelligence the better they are going to be at determining what to/not to eat. Good luck 🙂

  4. Pingback: My Recovery – Part I « Autoimmune-Paleo

  5. Thank you for sharing your story. I feel less alone knowing that you and others have gone through similar long, painful, arduous trials as myself. I’m looking forward to your recovery story.

  6. Pingback: My Recovery – Part II « Autoimmune-Paleo

  7. Hi Mickey,
    I stumbled upon your story and am glad that I did. My experience has been really similar to yours, although I am still trying to find out what is going on with my thyroid… I have hypothyroid and celiac’s but no Hashimoto’s antibodies. I have a lot of the same problems with dizziness and low blood pressure, and cutting out gluten got rid of my headaches but I was really disappointed that I didn’t see much improvement otherwise. I have also been a vegan for years and have been struggling with the idea of adding meat into my diet. I have added fish but am so used to the idea that vegan is healthy, better for the environment and safe that it’s still really difficult. I might make a leap after reading your story though. Thanks!

    • Thanks for the reply Kate! Have you looked into adrenal fatigue? I was convinced that my dizziness and BP problems were due to my thyroid, only to find out that it was classic adrenal fatigue. The adrenals can also cause low thyroid function if they get bad enough.

      I was very surprised when I got my celiac diagnosis that going gluten-free didn’t have a better effect on me. I did an elimination diet and noticed that I had a horrible reaction to oats (gluten free ones!), quinoa, and sorghum. This was bad because I was eating a lot of gluten-free baked goods with these ingredients. It wasn’t until I eliminated all grains but rice that I noticed a big change. I have also read about foods that cross-react with celiac, and dairy is one of the biggest ones (also quinoa, coffee, and some others). Super frustrating, but something to consider looking in to!

      I could write forever about how I feel about going from being Vegan to Paleo (I’ll probably blog more about it at some point) but it was one of the biggest factors that led me to start studying nutrition. All of my beliefs as a vegan about how I was healthy because I did not eat meat were shattered when I actually started looking into the role that animal protein, good fats, cholesterol, and the fat-soluble vitamins play in the body. I believe that anything we eat, plant or animal can be unhealthy for a human and the planet if it is not raised with care. Our culture is so obsessed about grouping foods into categories of good or bad, cancer causing or not, when really it is about the origin and quality of those ingredients that makes a difference in how they act once they are in our bodies. I think adding fish is great, and you may be able to get the nutrition you are lacking just from that, although my experience was that red meat was particularly healing for me personally. Everyone is different! If my body was able to be healthy eating vegan, I would gladly still be one because I hate being responsible for animals suffering, but I no longer have that choice. Take care 🙂

      • Hi Mickey, Thank you for responding to my comment, I really appreciate it. I never comment on blogs! I had my adrenals tested a while ago and my doctor was surprised that they were normal. So far since dealing with different diets the last couple years I’ve had a lot of improvement, but at this point I just kind of feel embarrassed that I don’t feel amazing like everyone expects, including my doctors. I sort of plateaued after improving some on thyroid hormone replacement and a diet free of gluten, soy and dairy but still have fatigue, nausea and dizziness that makes a huge impact on my life. When I do the elimination diets I have trouble detecting when a food affects me negatively. I never have violent reactions, I just always feel tired. When I accidentally ate gluten early on I didn’t feel anything, same with soy. Strange! I decided a couple weeks ago to try eliminating foods with possible gluten cross-reactions including all grains from my diet and am hoping maybe I’ll start to see changes again. I would eat vegan also if I could thrive on that diet, but it has become clear that I can’t either. I think being vegan can really become part of our identity and that can make giving it up so difficult. Well, Thanks so much for posting and giving me hope that I will continue to improve! I love your recipes.

  8. Pingback: My Story – Part II « Autoimmune-Paleo

  9. Pingback: My Struggle With Exercise and Autoimmunity « Autoimmune-Paleo

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